I have taken a little time from writing not because I wanted
to but because honestly my mind and heart couldn’t do it. I have tried to hold it all together for all
of the assorted people in my life and worked on getting it together for
me. So I am sitting here thinking about
this again, about how much I miss writing.
About how I wonder if anyone missed the posts that I have made.
I have had people tell me that my medical journey is over
since we no longer have Zachary on earth, while Zach’s journey is over. My family’s journey is not… we have 3 other people
in this family; we have extended family that matters and close friends that
matter. I mention this because we have
been walking in and out of the medical world; I am learning it is quite
different than what I had with Zach.
Zachary was blessed with some of the most caring doctors and his story
wasn’t the norm on what had to be done.
I developed friendships because of Zachary which have helped me walk
this new journey. Friendships that
helped connect me with doctors that I could trust and that if they said don’t
worry it calmed my heart. I am learning
things now that I never had to with Zachary but I am understanding right now
how hard it must have been for him to SMILE and to be the amazing little boy
that he was. Friendship developed
through my grief but now stand strong through the normal waves of life.
There are so many things that effect us and yet we just keep
walking, we keep working with the waves.
There are many people that are impacted by invisible diseases, diseases
that you can’t tell that the person has from the outside of the body, they don’t
have to lose their lives to them like Zachary did, and they may simply lose out
on some of the other things in lives.
Those diseases can cause you to lose out on family time, work,
recreational time, and/or dates with friends.
They may affect how you feel about yourselves and often will affect the
moods that you have. Why do I mention
this? Well it is simple; I as well as some of the people I am close to have
invisible diseases. They have different
names… psoriatic arthritis, rheumatoid arthritis, fibromyalgia, chron’s
disease, abdominal migraines, metabolic diseases, depression, allergies,
migraines, diabetes… I know that there are many other diseases. However, with these invisible diseases come
along pain and sufferings that we often face in silence.
Now that I have mentioned this I can say why I mention it… I
am learning that I am the only one that can determine how I am going to listen
to my body. The standards and normal
that I was used to can vary hugely based on how my body is doing. There are times when I can’t get up to do
things and while I really want to I can’t.
There are times when I want to be able to talk with a family member but
work has taken all of her strength from her.
There are emotions that I have to realize aren’t truths, they aren’t
based in fact but in emotions that because of the daily waves that are hard to
deal with.
My Goal is to learn how to deal with things… as the waves of
life come and I get knocked down to remember that I are worth it, that I am
alone, but also to learn and to remember that I have been really blessed by the
people that I have around me, that love on me and care about me.
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