well, things aren't easy.
WOW where to start, 1st I am so sorry that I haven't updated this often, I have been doing the caringbridge cause it has been a little easier but I wanted to write here and add some prayer request on the bottom of this post/update.
So we have been in and out of the hospital lately... we were in the hospital for 13 days out at home for 8 and now have been in patient for 10 days. This trip has been hard and we don't know what all is going. This might all be part of his MITO and it might be things that we have to learn how to handle and move on.
One of the hardest things about this is being separated.... I miss my husband, I miss my son, I miss tucking him in at night and having dinner with them. I keep telling myself that this is just for a season.
I used to think that offering to help was enough but I am slowly realizing, actually I really know that sometimes you just have to step up and do something. Something that is on my mind, It was overheard tonight that "Adam and Jen have so many people that want to do things but they aren't willing to tell them what to do" Oh my, Can I vent on this for a moment? Have you thought about what we are going through and what is happening.. our family has been ripped apart, half at home and half at the hospital. We have always been together for meals and for bed times and now it doesn't happen that way. We don't know talents or abilities or what you might be willing to actually do. This frustrates me... if you know of something, or what to do something, please just do it. I have been so wrapped up in Zach's care that I forgot to eat today, if I forget to eat what makes you think that I know what to tell you to do for us. Please Please please just do whatever your heart leads, whatever God wants you to do.